Impact, self-coping, and social support of patients with Spinocerebellar Ataxia
| Autor: | Zong-Dar Tsai, 蔡宗達 |
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| Rok vydání: | 2014 |
| Druh dokumentu: | 學位論文 ; thesis |
| Popis: | 102 Spinocerebellar Ataxia (SCA) is one kind of rare disorders, the majority of patients are onset in adulthood. But there is lack of a comprehensive research in how the patients to face their life. Therefore, this research through in-depth interviews six patients with SCA, probing the impact, self-coping, and social support. And will analyze in four aspects: instrumental, emotional, informational, and appraisal. The result from the various impacts patients face, difficult to meet the needs of everyday life, and doing all it can by self-coping. We found limited social support is particularly important. Therefore, this study suggests that enhanced messaging platform can be near nature, the establishment of professional medical services, provide the families of social support, as well as increasing SCA for understanding. |
| Databáze: | Networked Digital Library of Theses & Dissertations |
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