Recognizing and Accepting —Taking Care of My Systemic Lupus Erythematosus Daughter and My Family Story
| Autor: | Mei-Li Lin, 林美麗 |
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| Rok vydání: | 2011 |
| Druh dokumentu: | 學位論文 ; thesis |
| Popis: | 99 In the thesis, the researcher chooses self-exploring as research method. There are three research purposes: 1. The difficult situation between my 13 years old daughter catching SLE and parent-child relationship. 2. The life experience between daughter catching a serious disease and Mother or caretaker, and their growing sequences. 3. The process in learning to coexist with disease. That is to say, the researcher makes a dialogue with her own life to solve the above three study problems, such as the seeking and transferring process in growth of body, mind, and spirit. The core of such a family would transfer while sick children’ condition change. Parents and their family should examine how to make relationship between family and its members better by learning and introspecting. Catching a disease could reveal the hidden family trouble. The trouble generally is caused by family relationship and self-identity. The researcher chooses to face self and explore self in different points of view at times. Besides, the researcher spurs herself on facing and solving problems, and reverses the dangerous trend to see the hopeful future. Moreover, children catching serious-degree SLE always strongly depend on family. Their parents expect their sick children can own correct cognition of diseases, with suitable attitude and behavior to have better life quality while diseases change. Also, their parents must concern about other healthy children in family on their mental health and family relationship. Serious-degree SLE is changeable in parents’ condition. SLE made my daughter lose her left sight, catch dialysis in her all life, and catch diseases many kinds of organs. The series of disease crisis result in family difficult situation and role conflict in which Mother takes part in. In both of them, it lastly exists two counter pulling power of the anxiety in expecting death and transfer in anxiety. Turning the crisis pushes the researcher to put more power in learning and self-examination. The researcher come back into university to study in Psychotechnics and passed an examination of Graduate Institute studying in life-death education and instruction master programs in National Taipei University of Nursing and Health Science in 50 years old. Daughter also gave up learning in Graduate Institute studying in Sociology master program, and passed an examination of Graduate Institute studying in mental consultation master programs in Fu Jen Catholic University. In the recent two years, the dialogue of mother-daughter and mother-son makes us discover the life value. We do these just to make preparation for responding to life-death and helping others. Till now, we are still in the process of exploring, learning, and putting it into practice. The researcher would like to provide self real experience to similar topic researches, mental consultants, and fellow suffers like me. In the thesis, arranging for four stages according to three topics to lay out one and one stories not in time sequence but by writing power to show the original ideas and emotional connection with stories. The researcher believe readers can feel the researcher’s beginning heart and experience study topic and study substance in such an arrangement out of time order after reading. Furthermore, the readers can have sympathy with the researcher playing multi-role, introspecting herself, and performing what she learned. Besides, the reader maybe can discover together the suffering mystery. Also the real study case can teach or give the following suggestions to mothers like me living in Taiwan society. When their children caught serious diseases, they must learn to know themselves again, and realize own life missions in the world. |
| Databáze: | Networked Digital Library of Theses & Dissertations |
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