A Survey to Explore the Perception of Genetic Counseling in Diverse Collegiate Populations

Autor: Lindak, Leah Kay
Jazyk: angličtina
Rok vydání: 2020
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Druh dokumentu: Text
Popis: The field of genetic counseling has continuously grown over the past several decades. However, diversity in the field has remained stagnant. Despite inclusion efforts from the National Society of Genetic Counselors, graduate programs, and other organizations, the representation from people of diverse backgrounds entering the profession has remained low. This study aimed to identify carrier goals and barriers to pursuing genetic counseling of underrepresented minority students at The Ohio State University. To evaluate our aims, a 24-item survey was administered. Additionally, five phone interviews were conducted to facilitate open discussion and elaboration on survey responses. Questions asked during the survey and interviews were designed to assess participants’ interest in healthcare, career motivators, awareness of genetic counseling, and sources of advice and support. Survey responses showed that 63% of participants decided on a career path around 16-19 years old. This decision was influenced by participants’ desire to help other people, have a hands-on career, and have a variety of options in their profession. Survey respondents showed that family, friends, and life experiences were the greatest sources of advice and support. When looking at exposure to genetic counseling, 77% report hearing about the profession. Of that group, 42% felt they knew a lot about it and 35% felt they knew very little. Direct exposure to genetic counseling via a healthcare professional, advisor, or professor increased perceived awareness. Although the small number of interviews did not allow for statistically significant data, the dialogue exposed that perceived knowledge of genetic counseling may be higher than actual knowledge. Given that family and peers are major sources of advice and support for career decisions in late adolescence, we should develop earlier and more targeted exposure to genetic counseling among people in this age group and their families. Further complicating educational inclusion programs is the disparity in access to clinical genetic counseling among communities of minority background. Earlier outreach and exposure from both perspectives – clinical access and educational opportunity – could improve the success of these programs overall.
Databáze: Networked Digital Library of Theses & Dissertations