New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death Dying from HDQLIFE (a patient-reported outcomes measurement system)

Autor:	Carlozzi, N. E., Downing, N. R., McCormack, M. K., Schilling, S. G., Perlmutter, J. S., Hahn, E. A., Lai, J. -S., Frank, S., Quaid, K. A., Paulsen, J. S., Cella, D., Goodnight, S. M., Miner, J. A., Nance, M. A.
Zdroj:	Quality of Life Research, 2016 Oct 01. 25(10), 2403-2415.
Databáze:	JSTOR Journals
Externí odkaz:	https://www.jstor.org/stable/44852979 Zobrazit plný text záznamu