The Current Situation and Needs of Rare Disease Registries in Europe

Autor: Taruscio, D., Gainotti, S., Mollo, E., Vittozzi, L., Bianchi, F., Ensini, M., Posada, M.
Zdroj: Public Health Genomics, 2013 Jan 01. 16(6), 288-298.
Databáze: JSTOR Journals