Patients' and caregivers' perspectives: assessing an intensive rehabilitation programme and outcomes in Huntington's disease
| Autor: | Zinzi, Paola, Salmaso, Dario, Frontali, Marina, Jacopini, Gioia |
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| Rok vydání: | 2009 |
| Předmět: |
Sozialwissenschaften
Soziologie Medizin und Gesundheit Social sciences sociology anthropology Medicine and health Huntington's disease Postal survey Patient and caregiver perspective Health-care research Medizin Sozialmedizin Gesundheitspolitik Health Policy Medicine Social Medicine rehabilitation Rehabilitation |
| Zdroj: | Journal of Public Health, 17, 5, 331-338 |
| Druh dokumentu: | journal article<br />Zeitschriftenartikel |
| DOI: | 10.1007/s10389-009-0252-y |
| Popis: | Aim: To investigate the subjective evaluation of an intensive rehabilitation programme and outcomes by people with Huntington’s disease (HD) and their caregivers. Subjects and methods: A written questionnaire was mailed to people with mild-moderate HD (n = 40) who had completed at least one course of the intensive, inpatient rehabilitation protocol carried out at a facility of the Italian National Welfare System in the previous 3 years (on average 8.6 months before). Descriptive and inferential statistics were used. Thematic analyses were also conducted on written texts. Results: The response rate was 93%. A general improvement after discharge was perceived by all of the respondents. Improvements were reported on gait, balance, motor control, and fall reduction. Duration of benefits was estimated to last from 1 to 3 months by 71% of informants with no carry over to the next admission, which occurred on average 5.7 months later. Ameliorations were also reported in speech and swallowing, and several psychosocial aspects: mood, apathy, familiar and social relationships (binomial test, p |
| Databáze: | SSOAR – Social Science Open Access Repository |
| Externí odkaz: |
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