Quality of life and support needs in children, adolescents, and young adults with facioscapulohumeral dystrophy, a mixed-method study

Autor: Dijkstra, Jildou N., Rasing, Nathaniël B., Boon, Helena T.M., Altena-Rensen, Sandra, Cup, Edith H.C., Lanser, Anke, Siemann, Ietske J., van Engelen, Baziel G., Erasmus, Corrie E., Voermans, Nicol C.
Zdroj: In European Journal of Paediatric Neurology May 2024 50:64-73
Databáze: ScienceDirect