VP.55 Fatigue, pain, breathing, voice, fatigability, sleep, rest and vulnerability as meaningful outcomes in SMA care: the patients´ and caregivers' voice

Autor: Povedano, M., Vázquez-Costa, J., Pitarch, I., López-Lobato, M., Medina, J., Fernández-Ramos, J., Lafuente-Hidalgo, M., Rojas-García, R., Caballero-Caballero, J., Málaga, I., Eirís, J., De Lemus, M., Cattinari, M., Madruga-Garrido, M., Branas, M., Cabello-Moruno, R., Díaz-Abós, P., Terrancle, A., Maurino, J., Rebollo, P.
Zdroj: In Neuromuscular Disorders October 2022 32 Supplement 1:S92-S92
Databáze: ScienceDirect