When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority

Autor: Berkman, Benjamin E., Biesecker, Leslie G., Hull, Sara C., Biswas, Sawona, Chung, Wendy K., Koenig, Barbara, Lehmann, Lisa S., Lewis, Michelle, McGuire, Amy L., Slashinski, Melody J., Ross, Lainie F., Salama, Joseph S., Skinner, Debra, Tabor, Holly K., Wolf, Susan M., Perry, Cassandra, Chandler, Ariel, Cobb, Beth, Harley, John, Myers, Melanie, Chiavacci, Rosetta, Connolly, John, Faucett, Andy, Fetterolf, Samantha, Ledbetter, David, Williams, Janet, Ehrlich, Kelly, Fullerton, Malia, Hansen, Kelly, Hartzler, Andrea, Scrol, Aaron, Carruth, Lucy, Chau, Elizabeth, Chute, Chris, Kullo, Iftikhar, Sharp, Richard, Brilliant, Murray, Frost, Norm, Kitchner, Terrie, McCarty, Cathy, Ferryman, Kadija, Horowitz, Carol, Keppel, Yolanda, Rhodes, Rosamond, Sanderson, Saskia, Zinberg, Randi, Aufox, Sharon, Heathcote, Michael, Pan, Vivian, Smith, Maureen, Garrison, Nanibaa', Basford, Melissa, Kirby, Jacqueline, Bodin Claar, Mollie, Melancon, Lauren, Stallings, Sarah, Brothers, Kyle B., Holm, Ingrid A., Childerhose, Janet E., Antommaria, Armand H.M., Bernhardt, Barbara A., Clayton, Ellen Wright, Gelb, Bruce D., Joffe, Steven, Lynch, John A., McCormick, Jennifer B., McCullough, Laurence B., Parsons, D. Williams, Sundaresan, Agnes S., Wolf, Wendy A., Yu, Joon-Ho, Wilfond, Benjamin S.
Zdroj: In The Journal of Pediatrics January 2016 168:226-231
Databáze: ScienceDirect