Impact of a genetic counseling requirement prior to genetic testing

Autor: David D. Stenehjem, Trang Au, Amy M. Sainski, Hillevi Bauer, Krystal Brown, Johnathan Lancaster, Vanessa Stevens, Diana I. Brixner
Jazyk: angličtina
Rok vydání: 2018
Předmět:
Zdroj: BMC Health Services Research, Vol 18, Iss 1, Pp 1-11 (2018)
Druh dokumentu: article
ISSN: 1472-6963
DOI: 10.1186/s12913-018-2957-5
Popis: Abstract Background Genetic counseling by a Genetic Counselor (GC) is a requirement prior to genetic testing for cancer susceptibility genes (GC-mandate policy) for some insurers. This study evaluated the impact of this policy from the patient perspective. Methods Surveys were sent to individuals for whom their insurer ordered genetic testing for the cancer susceptibility genes BCRA1 and BRCA2 over a 1 year time period that spanned the introduction of a GC-mandate policy. Responses were assessed by time period (before/after policy introduction) and genetic test completion. Results The surveys were completed by 1247/4950 (25.7%) eligible individuals. After policy introduction, there was no change in the proportion of respondents who completed genetic testing (p = 0.13) or had a mutation (p = 0.55). Overall decisional conflict (uncertainty or feeling uninformed) around genetic testing did not change after policy introduction (p = 0.16), but was significantly higher among respondents who did not complete genetic testing (p
Databáze: Directory of Open Access Journals
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