The socioeconomic burden of pediatric tuberculosis and role of child-sensitive social protection

Autor: Kinari Shah, Jascent Nakafeero, Jillian L. Kadota, Peter Wambi, Gertrude Nanyonga, Emma Kiconco, Atwiine Deus, Moorine P. Sekadde, Mary G. Nabukenya-Mudiope, Hellen Aanyu- Tukamuhebwa, Ezekiel Mupere, Swomitra Mohanty, Adithya Cattamanchi, Eric Wobudeya, Priya B. Shete, Devan Jaganath
Jazyk: angličtina
Rok vydání: 2023
Předmět:
Zdroj: BMC Public Health, Vol 23, Iss 1, Pp 1-9 (2023)
Druh dokumentu: article
ISSN: 1471-2458
DOI: 10.1186/s12889-023-17084-7
Popis: Abstract Background Households of children with tuberculosis (TB) experience financial and social hardships, but TB-specific social protection initiatives primarily focus on adults. Methods We conducted a single-arm, pilot study of multi-component supportive benefits for children with pulmonary TB in Kampala, Uganda. At diagnosis, participants received in-kind coverage of direct medical costs, a cash transfer, and patient navigation. Caregivers were surveyed before diagnosis and 2 months into TB treatment on social and financial challenges related to their child’s illness, including estimated costs, loss of income and dissaving practices. Results We included 368 children from 321 households. Pre-diagnosis, 80.1% of caregivers reported that their child’s illness negatively impacted household finances, 44.1% of caregivers missed work, and 24% engaged in dissaving practices. Catastrophic costs (> 20% annual income) were experienced by 18.4% (95% CI 13.7–24.0) of households. School disruption was common (25.6%), and 28% of caregivers were concerned their child was falling behind in development. Two months post-diagnosis, 12 households (4.8%) reported being negatively affected by their child’s TB disease (difference -75.2%, 95% CI -81.2 to -69.2, p
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