The Process and Impact of Stakeholder Engagement in Developing a Pediatric Intensive Care Unit Communication and Decision-Making Intervention
| Autor: | Kelly N Michelson MD, MPH, Joel Frader MD, MA, Lauren Sorce RN, MSN, CPNP-AC/PC, Marla L Clayman PhD, MPH, Stephen D Persell MD, MPH, Patricia Fragen BA, Jody D Ciolino PhD, Laura C Campbell BS, Melanie Arenson BA, Danica Y Aniciete MS, Melanie L Brown MD, MSE, Farah N Ali MD, MS, Douglas White MD, MAS |
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| Jazyk: | angličtina |
| Rok vydání: | 2016 |
| Předmět: | |
| Zdroj: | Journal of Patient Experience, Vol 3 (2016) |
| Druh dokumentu: | article |
| ISSN: | 2374-3743 2374-3735 23743735 |
| DOI: | 10.1177/2374373516685950 |
| Popis: | Stakeholder-developed interventions are needed to support pediatric intensive care unit (PICU) communication and decision-making. Few publications delineate methods and outcomes of stakeholder engagement in research. We describe the process and impact of stakeholder engagement on developing a PICU communication and decision-making support intervention. We also describe the resultant intervention. Stakeholders included parents of PICU patients, healthcare team members (HTMs), and research experts. Through a year-long iterative process, we involved 96 stakeholders in 25 meetings and 26 focus groups or interviews. Stakeholders adapted an adult navigator model by identifying core intervention elements and then determining how to operationalize those core elements in pediatrics. The stakeholder input led to PICU-specific refinements, such as supporting transitions after PICU discharge and including ancillary tools. The resultant intervention includes navigator involvement with parents and HTMs and navigator-guided use of ancillary tools. Subsequent research will test the feasibility and efficacy of our intervention. |
| Databáze: | Directory of Open Access Journals |
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