Critical Data for Critical Care: A Primer on Leveraging Electronic Health Record Data for Research From Society of Critical Care Medicine’s Panel on Data Sharing and Harmonization

Autor: Smith F. Heavner, PhD, RN, Vishakha K. Kumar, MD, MBA, Wes Anderson, PhD, Tamara Al-Hakim, MD, Pam Dasher, MLS, Donna Lee Armaignac, PhD, APRN, CCNS, CCRN, Gilles Clermont, MD, MS, J. Perren Cobb, MD, FACS, FCCM, Sean Manion, PhD, Kenneth E. Remy, MD, MHSc, MSCI, FCCM, Karin Reuter-Rice, PhD, NP, FAAN, FCCM, Melissa Haendel, PhD, FACMI, Society of Critical Care Medicine (SCCM) Discovery Panel on Data Sharing and Harmonization
Jazyk: angličtina
Rok vydání: 2024
Předmět:
Zdroj: Critical Care Explorations, Vol 6, Iss 11, p e1179 (2024)
Druh dokumentu: article
ISSN: 2639-8028
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DOI: 10.1097/CCE.0000000000001179
Popis: A growing body of critical care research draws on real-world data from electronic health records (EHRs). The bedside clinician has myriad data sources to aid in clinical decision-making, but the lack of data sharing and harmonization standards leaves much of this data out of reach for multi-institution critical care research. The Society of Critical Care Medicine (SCCM) Discovery Data Science Campaign convened a panel of critical care and data science experts to explore and document unique advantages and opportunities for leveraging EHR data in critical care research. This article reviews and illustrates six organizing topics (data domains and common data elements; data harmonization; data quality; data interoperability and digital infrastructure; data access, sharing, and governance; and ethics and equity) as a data science primer for critical care researchers, laying a foundation for future publications from the SCCM Discovery Data Harmonization and Sharing Guiding Principles Panel.
Databáze: Directory of Open Access Journals