| Autor: |
Reza Jahanshahi, Amirreza Nasirzadeh, Mahan Farzan, Jan Domaradzki, Leila Jouybari, Akram Sanagoo, Mahour Farzan, Komeil Aghazadeh-Habashi, Ahmadreza Fallah Faraghe, Sadegh Bagheri, Marziyeh Samiee, Arina Ansari, Kimia Eskandari, Negar Namakkoobi, Fatemeh Soltanimoghadam, Hadi Mashali, Erfan Yavari, Saba Bay, Nafiseh Memaripanah, Elahe Meftah, Saeed Amanzadeh, Fatemeh Talati, Sasan Bahramzadeh |
| Jazyk: |
angličtina |
| Rok vydání: |
2022 |
| Předmět: |
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| Zdroj: |
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-9 (2022) |
| Druh dokumentu: |
article |
| ISSN: |
1750-1172 |
| DOI: |
10.1186/s13023-022-02458-8 |
| Popis: |
Abstract Background Rare diseases are a new global health priority, requiring evidence-based estimates of the global prevalence of diseases to inform public policymakers and provide a serious challenge to the healthcare system that must not be ignored. The purpose of this study is to investigate Iranian future healthcare professionals' knowledge and opinions about rare diseases. Results A total of 6838 students responded to the questionnaire. Nursing and medical students had the highest participation. Almost 85% of participants rated their knowledge about rare diseases as poor or insufficient. While nearly 70 percent of participants took courses about rare diseases at university. Finally, 72.7% of future healthcare professionals did not feel ready to take care of a patient with a rare disease. Conclusion The present study has indicated a gap in Iranian medical students’ knowledge of rare diseases. The researchers believe that health science policymakers should make a joint effort to improve knowledge about rare diseases. Including courses with regard to rare diseases would be of benefit to future healthcare professionals. |
| Databáze: |
Directory of Open Access Journals |
| Externí odkaz: |
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