Psychosocial resources and psychopathology among persons with neuromuscular disorders during the COVID-19 pandemic

Autor: Silvia Sanzo’, Federica Tizzoni, Stefano C. Previtali, Angela Berardinelli, Maria Nobile, Massimo Molteni, Martina Manzoni, Arianna Tarabelloni, Annamaria Russo, Antonella Delle Fave, Maria Grazia D’Angelo
Jazyk: angličtina
Rok vydání: 2024
Předmět:
Zdroj: BMC Psychology, Vol 12, Iss 1, Pp 1-13 (2024)
Druh dokumentu: article
ISSN: 2050-7283
DOI: 10.1186/s40359-024-01742-5
Popis: Abstract Background The COVID-19 pandemic substantially affected the lives of persons with inherited neuromuscular disorders (INMD), causing disruption in clinical and support services. While several studies have investigated mental health, distress and psychosocial resources in the general population during the pandemic, little is known about the experience of persons with INMD. Methods This study was aimed to fill this gap by jointly investigating both psychopathological symptoms and psychosocial resources – specifically, resilience and perceived social support – among persons with INMD during the pandemic, taking into account demographic and clinical factors. Between April and December 2020, 59 participants with INMD (aged 15–59, 71.2% M) completed a questionnaire collecting demographic and clinical data, the Multidimensional Scale of Perceived Social Support, the Resilience Scale for Adults, and the Achenbach System of Empirically Based Assessment. Results Overall, participants showed good levels of resilience and perceived social support. A minority of participants reported clinically relevant psychopathological symptoms, 28.81% for anxiety and depression. Most psychopathological symptoms were negatively correlated with resilience (-0.347
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