| Autor: |
Kenneth Gersing, Sam Michael, Fred Prior, Joel Saltz, Richard Moffitt, Sara Rogovin, Jasmin Phua, Shaun Grannis, Ben Amor, Andrew Girvin, Ahmad Baghal |
| Jazyk: |
angličtina |
| Rok vydání: |
2024 |
| Předmět: |
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| Zdroj: |
International Journal of Population Data Science, Vol 9, Iss 5 (2024) |
| Druh dokumentu: |
article |
| ISSN: |
2399-4908 |
| DOI: |
10.23889/ijpds.v9i5.2898 |
| Popis: |
Data centralization is increasingly non-viable in the changing landscape of data privacy and data governance. New models of data sharing are needed, in particular when privacy-preserving record linkages (PPRL) are being used to connect data within restricted data enclaves and public open enclaves. We share a privacy-preserving data-sharing infrastructure that employs a linkage honest broker implementation of PPRL connecting structured electronic health record data between the National Center for Advancing Translational Science (NCATS) National Clinical Cohort Collaborative (N3C), a restricted data enclave, with the National Cancer Institute (NCI) Cancer Imaging Archive (TCIA), a public open enclave. In particular we will address: • Data governance models needed when linking data from restricted vs. public enclaves • Specific privacy-preserving consideration when linking to imaging data which contain specific structured data and imaging considerations • Privacy-preserving data aggregation when combining multi-modal data from restricted data enclaves with publicly discoverable imaging data |
| Databáze: |
Directory of Open Access Journals |
| Externí odkaz: |
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