| Autor: |
Jip W. T. M. de Kok, Miguel Á. Armengol de la Hoz, Ymke de Jong, Véronique Brokke, Paul W. G. Elbers, Patrick Thoral, Alejandro Castillejo, Tomás Trenor, Jose M. Castellano, Alberto E. Bronchalo, Tobias M. Merz, Martin Faltys, Collaborator group, Iwan C. C. van der Horst, Minnan Xu, Leo Anthony Celi, Bas C. T. van Bussel, Xavier Borrat |
| Jazyk: |
angličtina |
| Rok vydání: |
2023 |
| Předmět: |
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| Zdroj: |
Scientific Data, Vol 10, Iss 1, Pp 1-10 (2023) |
| Druh dokumentu: |
article |
| ISSN: |
2052-4463 |
| DOI: |
10.1038/s41597-023-02256-2 |
| Popis: |
Abstract Sharing healthcare data is increasingly essential for developing data-driven improvements in patient care at the Intensive Care Unit (ICU). However, it is also very challenging under the strict privacy legislation of the European Union (EU). Therefore, we explored four successful open ICU healthcare databases to determine how open healthcare data can be shared appropriately in the EU. A questionnaire was constructed based on the Delphi method. Then, follow-up questions were discussed with experts from the four databases. These experts encountered similar challenges and regarded ethical and legal aspects to be the most challenging. Based on the approaches of the databases, expert opinion, and literature research, we outline four distinct approaches to openly sharing healthcare data, each with varying implications regarding data security, ease of use, sustainability, and implementability. Ultimately, we formulate seven recommendations for sharing open healthcare data to guide future initiatives in sharing open healthcare data to improve patient care and advance healthcare. |
| Databáze: |
Directory of Open Access Journals |
| Externí odkaz: |
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Full text from SpringerLink