Burden of adult neurofibromatosis 1 questionnaire: translation and psychometric properties of the Persian version

Autor:	Reza Jahanshahi, Zahra Yasaghi, Fatemeh Mirzaei, Shohreh Ghasemi, Akram Sanagoo, Leila Jouybari, Samira Foji
Jazyk:	angličtina
Rok vydání:	2023
Předmět:	Cost of illness Iran Psychometrics Rare diseases Von Recklinghausen’s disease Medicine
Zdroj:	Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-6 (2023)
Druh dokumentu:	article
ISSN:	1750-1172
DOI:	10.1186/s13023-023-02681-x
Popis:	Abstract Background The notion of “burden” has taken a key place in the evaluation of care, particularly in the case of rare diseases. The aim of this study was to evaluate the psychometric properties of the burden of neurofibromatosis 1 questionnaire (BoN) and to determine the perceived disease burden. Results The 15-item BoN was translated into Persian, and no items were removed based on content validity. The adequacy of the sample was acceptable (KMO = 0.902), and Bartlett’s test of sphericity revealed statistically significant results (P
Databáze:	Directory of Open Access Journals
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