The use of personal health information outside the circle of care: consent preferences of patients from an academic health care institution

Autor: Sarah Tosoni, Indu Voruganti, Katherine Lajkosz, Flavio Habal, Patricia Murphy, Rebecca K. S. Wong, Donald Willison, Carl Virtanen, Ann Heesters, Fei-Fei Liu
Jazyk: angličtina
Rok vydání: 2021
Předmět:
Zdroj: BMC Medical Ethics, Vol 22, Iss 1, Pp 1-14 (2021)
Druh dokumentu: article
ISSN: 1472-6939
DOI: 10.1186/s12910-021-00598-3
Popis: Abstract Background Immense volumes of personal health information (PHI) are required to realize the anticipated benefits of artificial intelligence in clinical medicine. To maintain public trust in medical research, consent policies must evolve to reflect contemporary patient preferences. Methods Patients were invited to complete a 27-item survey focusing on: (a) broad versus specific consent; (b) opt-in versus opt-out approaches; (c) comfort level sharing with different recipients; (d) attitudes towards commercialization; and (e) options to track PHI use and study results. Results 222 participants were included in the analysis; 83% were comfortable sharing PHI with researchers at their own hospital, although younger patients (≤ 49 years) were more uncomfortable than older patients (50 + years; 13% versus 2% uncomfortable, p
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