Applying a risk governance approach to examine how professionals perceive the benefits and risks of clinical genomics in Australian healthcare

Autor: Yuwan Malakar, Justine Lacey, Natalie A. Twine, Denis C. Bauer
Jazyk: angličtina
Rok vydání: 2023
Předmět:
Zdroj: New Genetics and Society, Vol 42, Iss 1 (2023)
Druh dokumentu: article
ISSN: 1463-6778
1469-9915
14636778
DOI: 10.1080/14636778.2023.2192472
Popis: Clinical genomics is a system of multiple stakeholders and institutions. Yet, studies focusing on the comparative perspectives of these stakeholders are limited. This study engages four groups of professionals (clinical geneticists, genetic counselors, laboratory professionals, and researchers) working in clinical genomics to investigate their perceptions of the benefits and risks of using genomics in Australian healthcare. The study is underpinned by a risk governance approach. For data collection, qualitative semi-structured interviews were used. Our results show that all professionals unanimously identified that the benefit of clinical genomics lies in improving health outcomes for patients. However, the risks associated with delivering this benefit differed by professional category. We found that the further the profession was from the patient (e.g. researcher) the narrower the perceived risks were amongst the individuals interviewed. However, “privacy” as a perceived risk was ranked highly by all professions indicating a shared desire for responsible data governance practices.
Databáze: Directory of Open Access Journals
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