Participatory Research Partnership in Rehabilitation—Co-Development of a Model for Collaboration Process

Autor: Salla Sipari, Nea Vänskä, Krista Lehtonen, Sari Helenius, Toini Harra, Anu Kinnunen, Sara Väisänen, Ira Jeglinsky
Jazyk: angličtina
Rok vydání: 2023
Předmět:
Zdroj: Disabilities, Vol 3, Iss 3, Pp 410-425 (2023)
Druh dokumentu: article
ISSN: 2673-7272
DOI: 10.3390/disabilities3030027
Popis: Purpose: Collaboration that engages diverse stakeholders to actively participate in the rehabilitation research process is becoming a crucially important approach when the purpose is to promote well-being in everyday life. The aim of this study was to co-develop a partnership-based participation model for research with stakeholders such as researchers, rehabilitees, close ones, rehabilitation professionals and experts by experience. Methods: We applied an action research approach. The Participatory Research Partnership (PaRe) model was co-developed in a multi-phase process including a literature review, workshops and focus group discussions (64 participants). The model was tested, evaluated and further developed in a developmental training process with 50 experts in rehabilitation. Results: The PaRe model consists of five phases: (1) starting the research partnership; (2) building a research team; (3) reciprocal co-planning of research; (4) co-production of new research data; and (5) utilization of research data in everyday life. The model comprises examples and templates including developmental and ethical evaluation. Conclusions: The PaRe model enhances co-agency, interaction and co-learning in rehabilitation research and practices. Active participation of users and providers of rehabilitation services in scientific research promotes everyday accessibility and relevance of research-based knowledge. The model ensures that the research process and results are meaningful and empowering for the participants.
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