Family caregiver roles and challenges in assisting patients with cancer treatment decision‐making: Analysis of data from a national survey

Autor: James N. Dionne‐Odom, Erin E. Kent, Gabrielle B. Rocque, Andres Azuero, Erin R. Harrell, Shena Gazaway, Rhiannon D. Reed, Reed W. Bratches, Avery C. Bechthold, Kyungmi Lee, Frank Puga, Ellen Miller‐Sonet, Katherine A. Ornstein
Jazyk: angličtina
Rok vydání: 2023
Předmět:
Zdroj: Health Expectations, Vol 26, Iss 5, Pp 1965-1976 (2023)
Druh dokumentu: article
ISSN: 1369-7625
1369-6513
DOI: 10.1111/hex.13805
Popis: Abstract Background We aimed to describe the roles and challenges of family caregivers involved in patients' cancer treatment decision‐making. Methods Family caregiver‐reported data were analyzed from a national survey conducted in the United States by CancerCare® (2/2021–7/2021). Four select‐all‐that‐apply caregiver roles were explored: (1) observer (patient as primary decision‐maker); (2) primary decision‐maker; (3) shared decision‐maker with patient and (4) decision delegated to healthcare team. Roles were compared across five treatment decisions: where to get treatment, the treatment plan, second opinions, beginning treatment and stopping treatment. Ten challenges faced by caregivers (e.g., information, cost, treatment understanding) were then examined. χ2 and regression analyses were used to assess associations between roles, decision areas, challenges and caregiver sociodemographics. Results Of 2703 caregiver respondents, 87.6% reported involvement in patient decisions about cancer treatment, including 1661 who responded to a subsection further detailing their roles and challenges with specific treatment decisions. Amongst these 1661 caregivers, 22.2% reported an observing role, 21.3% a primary decision‐making role, 53.9% a shared decision‐making role and 18.1% a role delegating decisions to the healthcare team. Most caregivers (60.4%) faced ≥1 challenge, the most frequent being not knowing how treatments would affect the patient's physical condition (24.8%) and quality of life (23.2%). In multivariable models, being Hispanic/Latino/a was the strongest predictor of facing at least one challenge (b = −0.581, Wald = 10.69, p
Databáze: Directory of Open Access Journals
Externí odkaz:
Nepřihlášeným uživatelům se plný text nezobrazuje