The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada
| Autor: | Mike Warren BSc (Hons), Toni Leamon, Amanda Hall PhD, MPE, Laurie Twells BA, MSc, Phd, Catherine Street B.Pharm.Hons, Allan Stordy, Kakali Majumdar MSc, MSc Botany, Lorraine Breault PhD, R.Psych, Kirsten Fiest PhD, Jananee Rasiah PhD Candidate, MN, RN, Maria Santana PhD, Holly Etchegary BA, MASP, PhD |
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| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: | |
| Zdroj: | Journal of Patient Experience, Vol 7 (2020) |
| Druh dokumentu: | article |
| ISSN: | 2374-3735 2374-3743 23743735 |
| DOI: | 10.1177/2374373520909598 |
| Popis: | This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils’ governance structure, primary functions, creation and composition, and recount specific research-related activities with which they have been involved. Key challenges of these councils and facilitators of their use are also presented. Finally, members from both councils recount lessons learned and offer suggestions for others interested in advisory councils as a mechanism for patient engagement in any health research project. Members believe patient engagement can result in better quality research and encourage decision makers and researchers to utilize patients’ valuable input to inform health system changes and drive priorities at a policy level. |
| Databáze: | Directory of Open Access Journals |
| Externí odkaz: |
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