Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions
| Autor: | Bruna Gabrielle de Araújo Silva, Amanda Narciso Machado, Vanessa Medeiros da Nóbrega, Renata Cardoso Oliveira, Elenice Maria Cecchetti Vaz, Neusa Collet |
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| Jazyk: | portugalština |
| Rok vydání: | 2020 |
| Předmět: | |
| Zdroj: | Revista de Enfermagem da Universidade Federal de Santa Maria, Vol 10, Iss 0, Pp e76-e76 (2020) |
| Druh dokumentu: | article |
| ISSN: | 2179-7692 21797692 |
| DOI: | 10.5902/2179769242529 |
| Popis: | Objective: to analyze the management of care for children/adolescents with chronic diseases in the health care network, based on the experiences of families in the search for the care of their child. Method: a qualitative research, carried out with ten relatives of children/adolescents with chronic diseases, residents of the city of João Pessoa, Paraiba, Brazil. Data was collected from November 2017 to June 2018 through semi-structured interviews and submitted to inductive thematic analysis. Results: the health care network for children/adolescents with chronic diseases is disjointed and the care actions fragmented; families design their own therapeutic itineraries and do not receive support from e professionals/services in care management. Conclusion: disarticulation in the planning of care actions in health care networks, combined with punctual and discontinuous care for children/adolescents with chronic diseases and their family weaken and impoverish care management. |
| Databáze: | Directory of Open Access Journals |
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