FHIR-standardized data collection on the clinical rehabilitation pathway of trans-femoral amputation patients

Autor: Valerio Antonio Arcobelli, Serena Moscato, Pierpaolo Palumbo, Alberto Marfoglia, Filippo Nardini, Pericle Randi, Angelo Davalli, Antonella Carbonaro, Lorenzo Chiari, Sabato Mellone
Jazyk: angličtina
Rok vydání: 2024
Předmět:
Zdroj: Scientific Data, Vol 11, Iss 1, Pp 1-14 (2024)
Druh dokumentu: article
ISSN: 2052-4463
DOI: 10.1038/s41597-024-03593-6
Popis: Abstract Lower limb amputation is a medical intervention which causes motor disability and may compromise quality of life. Several factors determine patients’ health outcomes, including an appropriate prosthetic provision and an effective rehabilitation program, necessitating a thorough quantitative observation through different data sources. In this context, the role of interoperability becomes essential, facilitating the reuse of real-world data through the provision of structured and easily accessible databases. This study introduces a comprehensive 10-year dataset encompassing clinical features, mobility measurements, and prosthetic knees of 1006 trans-femoral amputees during 1962 hospital stays for rehabilitation. The dataset is made available in both comma-separated values (CSV) format and HL7 Fast Healthcare Interoperability Resources (FHIR)-based representation, ensuring broad utility and compatibility for researchers and healthcare practitioners. This initiative contributes to advancing community understanding of post-amputation rehabilitation and underscores the significance of interoperability in promoting seamless data sharing for meaningful insights into healthcare outcomes.
Databáze: Directory of Open Access Journals