Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research

Autor: Mhairi Aitken, Mary P Tully, Carol Porteous, Simon Denegri, Sarah Cunningham-Burley, Natalie Banner, Corri Black, Michael Burgess, Lynsey Cross, Johannes van Delden, Elizabeth Ford, Sarah Fox, Natalie Fitzpatrick, Kay Gallacher, Catharine Goddard, Lamiece Hassan, Ron Jamieson, Kerina H Jones, Minna Kaarakainen, Fiona Lugg-Widger, Kimberlyn McGrail, Anne McKenzie, Rosalyn Moran, Madeleine J Murtagh, Malcolm Oswald, Alison Paprica, Nicola Perrin, Emma Victoria Richards, John Rouse, Joanne Webb, Donald J Willison
Jazyk: angličtina
Rok vydání: 2019
Předmět:
Zdroj: International Journal of Population Data Science, Vol 4, Iss 1 (2019)
Druh dokumentu: article
ISSN: 2399-4908
DOI: 10.23889/ijpds.v4i1.586
Popis: This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field. Our key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all.
Databáze: Directory of Open Access Journals