Growth in diagnosis and treatment of primary immunodeficiency within the global Jeffrey Modell Centers Network

Autor:	Jessica Quinn, Vicki Modell, Jordan S. Orange, Fred Modell
Jazyk:	angličtina
Rok vydání:	2022
Předmět:	Primary immunodeficiency (PI) Jeffrey Modell Foundation (JMF) Jeffrey Modell Centers Network (JMCN) Network Awareness Education Immunologic diseases. Allergy RC581-607
Zdroj:	Allergy, Asthma & Clinical Immunology, Vol 18, Iss 1, Pp 1-19 (2022)
Druh dokumentu:	article
ISSN:	1710-1492
DOI:	10.1186/s13223-022-00662-6
Popis:	Key messages 1. The JMCN has steadily and substantially grown for more than 2 decades and continues to significantly influence the global Immunology community. 2. In addition to compiling an extensive global patient database, the expanding JMCN acts as a unique and critical resource, increasing awareness of PIs, educating physicians and patients, and facilitating diagnosis via expertise and genetic sequencing, as well as treatment. 3. The JMCN provides a platform to optimize research advances, earliest diagnosis, enhanced treatments, and implement standard-of-care and best practices through maximized connectivity, resulting in a better quality of life and improved outcomes for patients with PI.
Databáze:	Directory of Open Access Journals
Externí odkaz:	https://doaj.org/article/ec4fe58104a34b4f80daad3fa8ed9cb3 Zobrazit plný text záznamu View record in DOAJ Plný text ve formátu PDF Plný text ve formátu HTML
Nepřihlášeným uživatelům se plný text nezobrazuje	K zobrazení výsledku je třeba se přihlásit.