Assessing preparation for care transition among adolescents with rheumatologic disease: a single-center assessment with patient survey

Autor: Jordan E. Roberts, Olha Halyabar, Carter R. Petty, Mary Beth Son
Jazyk: angličtina
Rok vydání: 2021
Předmět:
Zdroj: Pediatric Rheumatology Online Journal, Vol 19, Iss 1, Pp 1-5 (2021)
Druh dokumentu: article
ISSN: 1546-0096
DOI: 10.1186/s12969-021-00544-y
Popis: Abstract Background Despite the risk for poor outcomes and gaps in care in the transfer from pediatric to adult care, most pediatric rheumatology centers lack formal transition pathways. As a first step in designing a pathway, we evaluated preparation for transition in a single-center cohort of adolescents and young adults (AYA) with rheumatologic conditions using the ADolescent Assessment of Preparation for Transition (ADAPT) survey. Findings AYA most frequently endorsed receiving counseling on taking charge of their health and remembering to take medications. Less than half reported receiving specific counseling about transferring to an adult provider. AYA with lower education attainment compared with those who had attended some college or higher had lower scores in self-management (1.51 vs 2.52, p = 0.0002), prescription medication counseling (1.96 vs 2.41, p = 0.029), and transfer planning (0.27 vs 1.62, p
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