Data for population-based health analytics: the Cohorts Consortium of Latin America and the Caribbean
| Autor: | Rodrigo M. Carrillo-Larco, Ian R. Hambleton |
|---|---|
| Jazyk: | English<br />Spanish; Castilian<br />Portuguese |
| Rok vydání: | 2024 |
| Předmět: | |
| Zdroj: | Revista Panamericana de Salud Pública, Vol 48, Iss 59, Pp 1-10 (2024) |
| Druh dokumentu: | article |
| ISSN: | 1020-4989 1680-5348 |
| DOI: | 10.26633/RPSP.2024.59 |
| Popis: | Objective. We describe the daily operations of the Cohorts Consortium of Latin America and the Caribbean (CC-LAC), detailing the resources required and offering tips to Caribbean researchers so this guide can be used to start a data pooling project. Methods. The CC-LAC began by developing a steering committee – that is, a team of regional experts who guided the project’s set up and operations. The Consortium invites investigators who agree to share individual-level data about topics of interest to become members and they then have input into the project’s goals and operations; they are also invited to coauthor papers. We used a systematic review methodology to identify investigators with data resources aligned with the project and developed a protocol (i.e. a manual of procedures) to document all aspects of the project’s operations. Results. If a study recruited people from more than one country, then the sample from each country was counted as a separate cohort, thus in 2024 our combined data resources include >30 separate units from 13 countries, with a combined sample size of >174 000 participants. Using this unique resource, we have produced region-specific risk estimates for cardiometabolic risk factors (e.g. anthropometrics) and cardiovascular disease, and we have developed a region-specific cardiovascular risk score for use in clinical settings. Conclusions. Data pooling projects are less expensive than collecting new data, and they increase the longer-term value and impact of the data that are contributed. Data pooling efforts require systematic and transparent methodology, and expertise in data handling and analytics are prerequisites. Researchers embarking on a data pooling endeavor should understand and be able to meet the various data protection standards stipulated by national data legislation as these standards will likely vary among jurisdictions. |
| Databáze: | Directory of Open Access Journals |
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