Caregiver burden in patients with moderate-severe cerebral palsy. The influence of nutritional status

Autor: José Miguel Martínez de Zabarte Fernández, Ignacio Ros Arnal, José Luis Peña Segura, Ruth García Romero, Gerardo Rodríguez Martínez
Jazyk: Spanish; Castilian
Rok vydání: 2021
Předmět:
Zdroj: Anales de Pediatría (English Edition), Vol 94, Iss 5, Pp 311-317 (2021)
Druh dokumentu: article
ISSN: 2341-2879
DOI: 10.1016/j.anpede.2020.06.008
Popis: Introduction: Patients with moderate-severe cerebral palsy (CP) require the support of their caregivers to carry out the Activities of Daily Living (ADLs). Objectives: to describe the comorbidities, need for care in children with CP and to analyse the influence of the degree of motor involvement, nutritional status and other neurological disorders. Methods: Cross-sectional and observational study. Patients with CP degrees III–IV–V according to the Gross Motor Function Classification System (GMFCS) have been studied. A record of comorbidities has been made and body composition has been studied using anthropometry and bioimpedance. In addition, a caregiver burden survey on ADLs has been carried out (10 items on the different actions: hygiene, clothing, transfers, sleeping and feeding). Which variables have the greatest influence on the perception of difficulty in performing ADLs have been studied. Results: 69 patients (50.7% women, mean age 10.46 ± 0.4 years) were analysed, with GMFCS grades: grade III 36.2% (N = 25), grade IV 29.0% (N = 20), grade V 34.8% (N = 24). A relationship was found between the caregiver burden score and GMFCS grade (p = 0.003) and intellectual disability (DI) (p
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