End-stage care for children after heart transplant

Autor: Melanie D. Everitt
Jazyk: angličtina
Rok vydání: 2023
Předmět:
Zdroj: Frontiers in Transplantation, Vol 2 (2023)
Druh dokumentu: article
ISSN: 2813-2440
DOI: 10.3389/frtra.2023.1221166
Popis: Heart transplant is performed annually in over 600 children worldwide to treat life-limiting cardiac disease. Conversations regarding waitlist mortality, post-transplant morbidity and mortality, and goals of care are commonplace pre-transplant. However, there is a void of information and resources for providers and families when end-stage disease recurs in the long-term transplant recipient. The purpose of this review is to discuss the care of the pediatric heart transplant recipient with chronic cardiac dysfunction occurring years after a successful transplant. This includes a need for transplant providers to have education and training related both to palliative care and medical ethics to improve shared decision making with patients and families.
Databáze: Directory of Open Access Journals