Parental awareness and perspectives on newborn screening in China: a questionnaire-based study

Autor: Xiaoshan Yin, Peiyao Wang, Ziyan Cen, Zinan Yu, Qimin He, Benqing Wu, Xinwen Huang
Jazyk: angličtina
Rok vydání: 2024
Předmět:
Zdroj: BMC Medical Ethics, Vol 25, Iss 1, Pp 1-8 (2024)
Druh dokumentu: article
ISSN: 1472-6939
DOI: 10.1186/s12910-024-01145-6
Popis: Abstract Background Low parental awareness and knowledge about newborn screening have been identified as a public issue. This study explored Chinese parents’ self-evaluation of awareness, knowledge, and methods of receiving information about newborn screening. Methods Using convenience sampling, we included 614 respondents who were expectant parents or parents of children aged 0-3 years. Our self-made questionnaire comprised four sections: sociodemographic characteristics, self-evaluation of awareness, detailed knowledge about newborn screening, and practical and expected methods of receiving newborn screening information. Results We found that 72.9% of participants were classified as aware of newborn screening. However, only 14.2% of the participants received a passing score on the newborn screening detailed knowledge questions. Knowledge level about newborn screening was significantly associated with gender (P
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