The Pediatric Autism Research Cohort (PARC) Study: protocol for a patient-oriented prospective study examining trajectories of functioning in children with autism

Autor: Kathy Georgiades, Eric Duku, Lonnie Zwaigenbaum, Teresa Bennett, Sue Robertson, Ronit Mesterman, Deepa Singal, Ana Hanlon-Dearman, Stelios Georgiades, Peter Rosenbaum, Melissa Carter, Irene Drmic, Briano Di Rezze, Elizabeth Kelley, Jonathan Lai, Anna Kata, Patrick G. McPhee, Yun-Ju Chen, Caroline Roncadin, Sherry Fournier, Julia Frei, Stephen J. Gentles, Lorraine Hoult, Judah Koller, Olaf Kraus de Camargo, Bill Mahoney, Olivia Ng, Mackenzie Salt, Mohammad S Zubairi
Jazyk: angličtina
Rok vydání: 2024
Předmět:
Zdroj: BMJ Open, Vol 14, Iss 4 (2024)
Druh dokumentu: article
ISSN: 2044-6055
DOI: 10.1136/bmjopen-2023-083045
Popis: Introduction The developmentally variable nature of autism poses challenges in providing timely services tailored to a child’s needs. Despite a recent focus on longitudinal research, priority-setting initiatives with stakeholders highlighted the importance of studying a child’s day-to-day functioning and social determinants of health to inform clinical care. To address this, we are conducting a pragmatic multi-site, patient-oriented longitudinal investigation: the Pediatric Autism Research Cohort (PARC) Study. In young children (
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