Holistic management of patients with progressive pulmonary fibrosis
| Autor: | Ana Oliveira, Gaia Fabbri, Thomas Gille, Elena Bargagli, Boris Duchemann, Rachel Evans, Hilary Pinnock, Anne E. Holland, Elisabetta Renzoni, Magnus Ekström, Steve Jones, Marlies Wijsenbeek, Anh Tuan Dinh-Xuan, Guido Vagheggini |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2023 |
| Předmět: | |
| Zdroj: | Breathe, Vol 19, Iss 3 (2023) |
| Druh dokumentu: | article |
| ISSN: | 1810-6838 2073-4735 20734735 |
| DOI: | 10.1183/20734735.0101-2023 |
| Popis: | Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare. Educational aims To identify the main needs of patients with PF and their caregivers. To describe the components of a comprehensive approach to a supportive care programme for patients with PF. To identify further areas of research to address technical issues related to the management of patients with PF. |
| Databáze: | Directory of Open Access Journals |
| Externí odkaz: |
|