Conceptual framework for data harmonisation in mental health using the International Classification of Functioning, Disability and Health: an example with the R2D2-MH consortium

Autor: Louise Gallagher, Tony Charman, Dieter Wolke, Jan Buitelaar, Sven Bölte, Emily Jones, Thomas Bourgeron, Marie Schaer, Kristien Hens, Declan Murphy, Melissa H Black, Christine Ecker, Yair Sadaka, Beate St Pourcain, Stef Bonnot-Briey
Jazyk: angličtina
Rok vydání: 2024
Předmět:
Zdroj: BMJ Mental Health, Vol 27, Iss 1 (2024)
Druh dokumentu: article
ISSN: 2755-9734
DOI: 10.1136/bmjment-2024-301283
Popis: Introduction Advancing research and support for neurologically diverse populations requires novel data harmonisation methods that are capable of aligning with contemporary approaches to understanding health and disability.Objectives We present the International Classification of Functioning, Disability and Health (ICF) as a conceptual framework to support harmonisation of mental health data and present a proof of principle within the Risk and Resilience in Developmental Diversity and Mental Health (R2D2-MH) consortium.Method 138 measures from various mental health datasets were linked to the ICF following the WHO’s established linking rules.Findings Findings support the notion that the ICF can assist in the harmonisation of mental health data. The high level of shared ICF codes provides indications of where items may be readily harmonised to develop datasets that may align more readily with contemporary approaches to understanding health and disability. Although the linking process necessarily entails an element of subjectivity, the application of established rules can increase rigour and transparency of the harmonisation process.Conclusions We present the first steps towards data harmonisation in mental health that is compatible with contemporary approaches in psychiatry, being more capable of capturing diversity and aligning with more transdiagnostic and neurodiversity-affirmative ways of understanding data.Clinical implications Our findings show promise, but future work is needed to address quantitative harmonisation. Similarly, issues related to the traditionally ‘pathophysiological’ frameworks that existing datasets are often embedded in can hinder the full potential of harmonisation based on the ICF.
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