Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study

Autor: Zhi Hong Ni PhD, Sheng Ding PhD, Jin Hua Wu PhD, Shuo Zhang PhD, Chun Yan Liu PhD
Jazyk: angličtina
Rok vydání: 2022
Předmět:
Zdroj: Inquiry: The Journal of Health Care Organization, Provision, and Financing, Vol 59 (2022)
Druh dokumentu: article
ISSN: 0046-9580
1945-7243
00469580
DOI: 10.1177/00469580221121510
Popis: This study aimed to investigate family caregivers’ experiences of caring for children with cerebral palsy in China. This study used a descriptive qualitative design. We selected 18 family caregivers from 3 children’s hospitals in Jiangsu Province, China, using a purposive sampling method. The following 5 themes emerged as needs of family caregivers’ experiences of caring for children with cerebral palsy: overall responsibility, being alone, exhaustion from caring, being a prisoner of life, and uncertainty regarding the future. The findings of our research contribute to a better understanding of the life situation of family caregivers of children with cerebral palsy as we identify the difficulties they experience as well as their specific needs.
Databáze: Directory of Open Access Journals