Functioning and equality according to International Classification of Functioning, Disability and Health (ICF) in people with skeletal dysplasia compared to matched control subjects – a cross-sectional survey study

Autor:	Hanna Hyvönen, Heidi Anttila, Susanna Tallqvist, Minna Muñoz, Sanna Leppäjoki-Tiistola, Antti Teittinen, Outi Mäkitie, Sinikka Hiekkala
Jazyk:	angličtina
Rok vydání:	2020
Předmět:	Skeletal dysplasia Short stature Functioning Accessibility Equality Disability Diseases of the musculoskeletal system RC925-935
Zdroj:	BMC Musculoskeletal Disorders, Vol 21, Iss 1, Pp 1-10 (2020)
Druh dokumentu:	article
ISSN:	1471-2474
DOI:	10.1186/s12891-020-03835-9
Popis:	Abstract Background Skeletal dysplasias are rare disorders often leading to severe short stature. This study aimed to gain new comprehensive information about functioning and equality in people affected by skeletal dysplasia compared to matched controls without skeletal dysplasia. Methods Functioning was assessed by questionnaire, which was formed by operationalizing International Classification of Functioning, Disability and Health (ICF) core set’s categories into the items according to the ICF linking rules, using primarily Patient Reported Outcomes Measurement Information System PROMIS® - items. Results Altogether 80 subjects with skeletal dysplasia and 55 age-, gender- and place of residence -matched controls participated. People with skeletal dysplasia experienced more pain (p
Databáze:	Directory of Open Access Journals
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