| Autor: |
Deniz Kızmazoğlu, Seher Sarı, Melike Sezgin Evim, Arzu Çırpan Kantarcıoğlu, Özlem Tüfekçi, Fatma Demir Yenigürbüz, Birol Baytan, Sebnem Yılmaz, Adalet Meral Güneş, Hale Ören |
| Jazyk: |
angličtina |
| Rok vydání: |
2019 |
| Předmět: |
|
| Zdroj: |
Turkish Journal of Hematology, Vol 36, Iss 2, Pp 112-116 (2019) |
| Druh dokumentu: |
article |
| ISSN: |
1308-5263 |
| DOI: |
10.4274/tjh.galenos.2018.2018.0351 |
| Popis: |
Objective: We investigated the health-related quality of life (HRQL) in survivors of pediatric acute lymphoblastic leukemia (ALL) and evaluated the perceptions of the children, their siblings, and their parents. Materials and Methods: Seventy ALL survivors, who were between 7 and 17 years of age and had completed therapy ≥2 years, were included. The control group consisted of their healthy siblings. HRQL was assessed by the age-specific KINDLR questionnaire. Results: No significant differences could be found among HRQL scores of ALL survivors with respect to variables such as sex, risk group, and having chronic illness. HRQL scores for physical well-being, emotional well-being, family, and social functioning of the patient and sibling self-reports and parent proxy reports were lower than the expected values for healthy and chronically ill children. Conclusion: These results demonstrate that both ALL survivors and their families need help via psychological counseling programs to improve their HRQL even after completion of therapy. |
| Databáze: |
Directory of Open Access Journals |
| Externí odkaz: |
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