Experience of the new seizure diary in the Free State and Northern Cape

Autor: Chika K. Egenasi, Anandan A. Moodley, Wilhelm J. Steinberg, Gina Joubert
Jazyk: angličtina
Rok vydání: 2023
Předmět:
Zdroj: South African Family Practice, Vol 65, Iss 1, Pp e1-e11 (2023)
Druh dokumentu: article
ISSN: 2078-6190
2078-6204
DOI: 10.4102/safp.v65i1.5736
Popis: Background: Epilepsy is a neurological disease affecting adults and children globally. A seizure diary is one of the self-management tools for tracking seizures. This study aims to ascertain the experience of a new seizure diary by persons completing the diary in the Free State and Northern Cape of South Africa. Methods: Adult patients with epilepsy attending Universitas Academic Hospital epilepsy clinic in Bloemfontein, clinics in Kimberley and the casualty department of Kimberley hospital (Robert Mangaliso Sobukwe hospital) received a new seizure diary. After using the diary for 6 months, participants (patients, relatives or caregivers) completed a questionnaire. Results: A total of 139 epilepsy patients received a new seizure diary; 67 previously diary-unexposed participants and 33 participants who had previous exposure to a seizure diary. The majority of participants, namely 91% of previously diary-unexposed and 84.9% of participants who had previous exposure to the seizure diary, understood the new seizure diary. Participants who had previous exposure to a seizure diary were predominantly very positive about the new diary because it had more information. However, 21.2% indicated that they preferred the old one because it was easier to complete. Conclusion: Patients, caregivers or relatives from both groups used the new seizure diary and provided important information about their experience with the new diary. Despite a few complaints about using the new diary, most participants who had previous exposure to a seizure diary preferred the new seizure diary. Contribution: This study explored participants’ opinions of the new seizure diary.
Databáze: Directory of Open Access Journals
Externí odkaz:
Nepřihlášeným uživatelům se plný text nezobrazuje