Protocol for investigating data quality and reporting outcomes of pediatric gliomas in population-based cancer registry research

Autor: Raoull Hoogendijk, Jasper van der Lugt, Mariëtte E.G. Kranendonk, Gemma Gatta, Riccardo Capocaccia, Eelco W. Hoving, Pieter Wesseling, Otto Visser, Dannis G. van Vuurden, Henrike Karim-Kos
Jazyk: angličtina
Rok vydání: 2024
Předmět:
Zdroj: STAR Protocols, Vol 5, Iss 1, Pp 102905- (2024)
Druh dokumentu: article
ISSN: 2666-1667
DOI: 10.1016/j.xpro.2024.102905
Popis: Summary: Cancer registry data on pediatric gliomas come with inherent limitations as inclusion criteria and registration practices of these tumors differ between registries due to specific guidelines that are lacking. These limitations can lead to biased estimates in incidence and survival outcomes. Here, we present a protocol to investigate data quality and comparability for retrospective population-based pediatric glioma studies. We describe steps for obtaining institutional permissions, dealing with data quality issues, regrouping tumors, and reporting tumors in a clinically relevant manner.For complete details on the use and execution of this protocol, please refer to Hoogendijk et al.1 : Publisher’s note: Undertaking any experimental protocol requires adherence to local institutional guidelines for laboratory safety and ethics.
Databáze: Directory of Open Access Journals