'Now I Don’t Have to Guess': Using Pamphlets to Encourage Residents and Families/Friends to Engage in Advance Care Planning in Long-Term Care
| Autor: | Tamara Sussman MSW, PhD, Sharon Kaasalainen RN, PhD, Matthew Bui RN, BScN, BScKin, MSc, Noori Akhtar-Danesh MSc, PhD, Susan Mintzberg MSW, Patricia Strachan RN, PhD |
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| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: | |
| Zdroj: | Gerontology and Geriatric Medicine, Vol 3 (2017) |
| Druh dokumentu: | article |
| ISSN: | 2333-7214 23337214 |
| DOI: | 10.1177/2333721417747323 |
| Popis: | Objective: This article explores whether access to illness trajectory pamphlets for five conditions with high prevalence in long-term care (LTC) can encourage residents and families/friends to openly engage in advance care planning (ACP) discussions with one another and with health providers. Method: In all, 57 residents and families/friends in LTC completed surveys and 56 participated in seven focus groups that explored whether the pamphlets supported ACP engagement. Results: Survey results suggested that access to pamphlets encouraged residents and families/friends to reflect on future care (48/57, 84%), clarified what questions to ask (40/57, 70%), and increased comfort in talking about end of life (EOL) care (36/57, 63%). Discussions between relatives and friends/families (32/57, 56%) or with health providers (21/57, 37%) were less common. Focus group deliberations illuminated that while reading illness-specific information was validating, a tendency to protect one another from an emotional topic, prevented residents and families/friends from conversing with one another about EOL issues. Discussion: Having access to pamphlets with information about EOL care provides important and welcome opportunities for reflection for both residents in LTC and their families/friends. Moving residents and families/friends from reflecting on issues to discussing them together could require staff support through planned care conferences or staff initiated conversations at the bedside. |
| Databáze: | Directory of Open Access Journals |
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