Future of Rare Diseases Research 2017-2027: An IRDiRC Perspective

Autor:	Austin, Christopher P., Cutillo, Christine M., Lau, Lilian P.L., Jonker, Anneliene H., Rath, Ana, Julkowska, Daria, Thomson, David, Terry, Sharon F., de Montleau, Béatrice, Ardigò, Diego, Hivert, Virginie, Boycott, Kym M., Baynam, Gareth, Kaufmann, Petra, Taruscio, Domenica, Lochmüller, Hanns, Suematsu, Makoto, Incerti, Carlo, Draghia-Akli, Ruxandra, Norstedt, Irene, Wang, Lu, Dawkins, Hugh J.S.
Rok vydání:	2017
Předmět:	Information Dissemination International Cooperation Research Reviews Review History 21st Century Health Services Accessibility Access to Information Translational Research Biomedical Rare Diseases Prevalence Humans Registries Patient Participation Goals Intersectoral Collaboration
Zdroj:	Clinical and Translational Science
ISSN:	1752-8062
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=pmid_dedup__::4f114604e1185d315b588a38f4e62a58 https://pubmed.ncbi.nlm.nih.gov/28796445 Zobrazit plný text záznamu Plný text