[Patients' evaluation of information provided by medical doctors on the invasive ventilator for amyotrophic lateral sclerosis. An analysis of a survey of patients and their families in Japan]

Autor:	Yayoi, Kitamura, You, Tsuchiya, Emiko, Tanaka, Mariko, Tamai, Tetsurou, Shimizu
Rok vydání:	2002
Předmět:	Interviews as Topic Male Physician-Patient Relations Ventilators Mechanical Patient Satisfaction Amyotrophic Lateral Sclerosis Humans Female Middle Aged Aged
Zdroj:	[Nihon koshu eisei zasshi] Japanese journal of public health. 49(9)
ISSN:	0546-1766
Popis:	The study aim was to evaluate by ALS patients' satisfaction regarding information about invasive ventilators provided by medical doctors.Semi-structural interviews were conduced for 12 cases (11 patients and 9 family members provided information) at three areas in Japan.1) Most patients were unsatisfied with the information by doctors; 2) some cases felt strong distrust of doctors' attitudes; 3) more than half of the cases complained of insufficient information.This study suggests that in the informed consent for ALS patients, doctors' negative attitudes to life prolongation adversely impact on ALS patients. Roles of service providers, patients and family members should be reconsidered for cases of ALS and other incurable diseases.
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=pmid________::9d9f0d787765d7d4cf3d7346643eef2d https://pubmed.ncbi.nlm.nih.gov/12402474 Zobrazit plný text záznamu