[Moving from patient information to involvement in associations for people living with HIV participating in a medical study in Senegal - ANRS cohort 1215]

Autor:	M, Couderc, C, Desclaux Sall
Jazyk:	francouzština
Rok vydání:	2014
Předmět:	Clinical Trials as Topic Biomedical Research Health Behavior Information Seeking Behavior Social Support HIV Infections Senegal Cohort Studies Patient Education as Topic HIV-1 Workforce Humans Community Health Services Patient Participation
Zdroj:	Bulletin de la Societe de pathologie exotique (1990). 107(4)
ISSN:	1961-9049
Popis:	Based on work in anthropology and the experience of the implementation of a project on ethics, this article describes the contributions of the ANRS 1215 cohort to information of participants and community involvement in research. It draws a parallel between the development of information methods and the roles gradually held by PLWA individually or collectively. From 1998 to 2011, the PLWA have diversified theirs activities (psycho-social support, administrative tasks, ethical watch function) and have contributed to improve the information of participants. This involvement of PLWHIV in ethics, which belongs to a long-term process, is analyzed through social, political, economical and ethical evolutions, both at national and international level.
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=pmid________::34160ae49cd89c5737021d547b1f74a9 https://pubmed.ncbi.nlm.nih.gov/24972695 Zobrazit plný text záznamu Full text from SpringerLink