An Online Community for Patient with Psoriasis with Built-in Self-Reported Questionnaires

Autor: Giuliana, Colussi, Delfina, Inda, Lucila, Bruchanski, Fernando, Binder, Barbara Agustina, Hernandez, Maria Luz, Bollea, María Julia, Cura, María Laura, Galimberti, Luis, Mazzuoccolo, Janine, Sommer, Fernando, Plazzotta, Daniel, Luna
Rok vydání: 2022
Předmět:
Zdroj: Studies in health technology and informatics. 290
ISSN: 1879-8365
Popis: This study presents an online psoriasis community developed with dermatologists in a PHR. We describe the interaction of users with this platform and the relationship between the use of self-report questionnaires, their results and users' subsequent contact with the healthcare system. Out of 2175 users that interacted with the platform, 477 visited the forums. 60% of those who completed questionnaires presented at least one abnormal result that prompted a recommendation for an outpatient visit. Although our data suggest a trend, we failed to find a statistically significant association between questionnaire severity and visits scheduling. To our knowledge, this is the first study that analyses the relationship between patient self-reported disease severity and the subsequent contact with the healthcare system.
Databáze: OpenAIRE