Building on an Ad Hoc Covid-19 Response to Enhance Community-based Care for Vulnerable Children in Kerala, India
| Autor: | Govindaraj, Geeta Madathil, Krishnakumar, Padinharath, Scaria, Vinod, Athulya, Edavazhippurath, Ajithkumar, V.T., Dongre, Amol R. |
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| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: | |
| Zdroj: | Nejm Catalyst Innovations in Care Delivery |
| ISSN: | 2642-0007 |
| Popis: | What started as a quick solution to deliver clinical care to at-risk pediatric patients during a widespread lockdown that restricted travel — partnering with police to transport vital blood supplies — is now evolving, with patient insights through virtual focus group discussions, to take advantage of multiple community-based facilities to provide care heretofore available only at a single academic tertiary care site. Summary The Covid-19–related lockdowns resulted in disruptions of care for children with inborn errors of immunity, who, without access to travel, would be unable to continue immunoglobulin replacement. We initiated a community-based care program through pediatricians in state-run peripheral hospitals. The police network, which was already actively involved in Covid-19 prevention, helped transport essential medicines from the tertiary care center. Two months later, we conducted virtual focus group discussions with the mothers to understand their experiences, identify possible gaps in care, and explore suggestions for improvement. Although the community-based care and subsequent virtual focus group discussions were instituted as a temporary measure to ensure continuity of care, we found that it is effective, feasible, and acceptable. Hence, we decided to continue the program even beyond the pandemic. This model of care can be extended to other chronic illnesses as well as to rare diseases in resource-constrained settings. |
| Databáze: | OpenAIRE |
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