Psychological wellbeing of parents of very young children with type 1 diabetes – baseline assessment

Autor: De Beaufort, Carine, Pit-Ten Cate, Ineke, Schierloh, Ulrike, Cohen, Nathan, Boughton, Charlotte, Tauschmann, Martin, Allen, Janet M., Nagl, Katrin, Fritsch, Maria, Yong, James, Metcalfe, Emily, Schaeffer, Dominique, Fichelle, Muriel, Thiele, Alena G., Abt, Daniela, Faninger, Kerstin, Mader, Julia K., Slegtenhorst, Sonja, Ashcroft, Nicole, Wilinska, Malgorzata E., Sibayan, Judy, Kollman, Craig, Hofer, Sabine E., Frohlich-Reiterer, Elke, Kapellen, Thomas, Acerini, Carlo, Campbell, Fiona, Rami-Merhar, Birgit, Hovorka, Roman
Jazyk: angličtina
Rok vydání: 2021
Předmět:
Zdroj: info:eu-repo/grantAgreement/EC/H2020/731560
Popis: Background: Type 1 diabetes in young children is a heavy parental burden. As part of pilot phase of the KIDSAP01 study, we conducted a baseline assessment in parents to study the association between hypoglycemia fear, parental wellbeing and child behavior. Methods: All parents were invited to fill in baseline questionnaires: hypoglycemia fear survey (HFS), WHO-5, Epworth Sleepiness Scale and Strength and Difficulties Questionnaire (SDQ). Results: 24 children (median age: 5-year, range 1-7 years, 63% male, mean diabetes duration: 3 ± 1.7 years) participated. 23/24 parents filled out the questionnaires. We found a higher score for the hypoglycemia fear behavior 33.9 ± 5.6 compared to hypoglycemia worry 34.6 ± 12.2. Median WHO-5 score was 16 (8 - 22) with poor well-being in two parents. Median daytime sleepiness score was high in five parents (>10). For six children a high total behavioral difficulty score (>16) was reported. Pro social behavior score was lower than normal in six children (
Databáze: OpenAIRE