Secondary Analysis of Existing Datasets for Dementia and Palliative Care Research: High-Value Applications and Key Considerations
| Autor: | Hunt, Lauren J, Lee, See J, Harrison, Krista L, Smith, Alexander K |
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| Rok vydání: | 2018 |
| Předmět: |
Male
Aging Data Interpretation Biomedical Research Clinical Sciences Nursing Neurodegenerative Alzheimer's Disease secondary dataset analysis Behavioral and Social Science 7.2 End of life care 80 and over Acquired Cognitive Impairment Humans Aged palliative care Neurosciences Alzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD) Statistical Middle Aged Brain Disorders Hospice and Palliative Care Nursing Neurological Public Health and Health Services Dementia Female Management of diseases and conditions Generic health relevance Gerontology |
| Zdroj: | Journal of palliative medicine, vol 21, iss 2 |
| Popis: | ObjectiveTo provide a guide to researchers selecting a dataset pertinent to the study of palliative care for people with dementia and to aid readers who seek to critically evaluate a secondary analysis study in this domain.BackgroundThe impact of dementia at end-of-life is large and growing. Secondary dataset analysis can play a critical role in advancing research on palliative care for people with dementia.MethodsWe conducted a broad search of a variety of resources to: 1. identity datasets that include information germane to dementia and palliative care research; 2. review relevant applications of secondary dataset analysis in the published literature; and 3. explore potential validity and reliability concerns.ResultsWe synthesize findings regarding: 1. Methodological approaches for determining the presence of dementia; 2. Inclusion and measurement of key palliative care items as they relate to people with dementia; and 3. Sampling and study design issues, including the role and implications of proxy-respondents. We describe and compare a selection of high-value existing datasets relevant to palliative care and dementia research.DiscussionWhile secondary analysis of existing datasets requires consideration of key limitations, it can be a powerful tool for efficiently enhancing knowledge of palliative care needs among people with dementia. |
| Databáze: | OpenAIRE |
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