EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California
| Autor: | Garrett, SB, Koenig, BA, Brown, A, Hult, JR, Boyd, EA, Dry, S, Dohan, D, Berglund, L, Dubinett, S, Firestein, G, Grady, D, Daniel Mercola, Johnston, SC, Sak, R, Cavaleri, G, Longstaff, H, Burgess, M |
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| Jazyk: | angličtina |
| Rok vydání: | 2015 |
| Předmět: |
Biomedical Research
Informed Consent Cardiovascular Medicine And Haematology Oncology And Carcinogenesis Universities population in collaboration with UC BRAID patients translational research biorepositories Other Medical And Health Sciences Humans General Clinical Medicine Biological Specimen Banks |
| Zdroj: | Garrett, SB; Koenig, BA; Brown, A; Hult, JR; Boyd, EA; Dry, S; et al.(2015). EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California. Clinical and Translational Science, 8(4), 362-366. doi: 10.1111/cts.12259. UC Davis: Retrieved from: http://www.escholarship.org/uc/item/5v11d6mq |
| DOI: | 10.1111/cts.12259. |
| Popis: | © 2015 Wiley Periodicals, Inc.. Biorepositories, or biobanks, provide researchers with access to biological samples and associated data in support of translational research. Efficient operation and ethical stewardship of biobanks involves coordinated efforts among multiple stakeholders including researchers who manage and use the repository, institutional officials charged with its oversight, and patients and volunteers who contribute samples and data. As advancements in translational research increasingly involve more data derived from larger numbers of diverse samples, the size and governance challenges facing biorepositories have grown. We describe an approach to developing efficient and ethical biobank governance that includes all major stakeholders. This model provides a pathway for addressing the technical and ethical challenges that must be resolved to ensure biorepositories continue to support translational research. |
| Databáze: | OpenAIRE |
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