A Review of Literature on Health-Related Quality of Life of Retinoblastoma Survivors
| Autor: | Belson, Paula J, Eastwood, Jo-Ann, Brecht, Mary-Lynn, Hays, Ron D, Pike, Nancy A |
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| Rok vydání: | 2020 |
| Předmět: |
Male
Adolescent Pediatric Cancer Retinal Neoplasms Oncology and Carcinogenesis Nursing retinoblastoma Young Adult Rare Diseases Cancer Survivors 7.1 Individual care needs Clinical Research Surveys and Questionnaires Behavioral and Social Science Humans cancer Child Preschool Eye Disease and Disorders of Vision Pediatric Infant Newborn humanities health-related quality of life quality of life Female Self Report |
| Zdroj: | Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses, vol 37, iss 2 |
| Popis: | Background: Retinoblastoma is a malignant tumor of the eye that typically presents in early childhood and occurs in approximately 1 in 20,000 births. While active treatment of the tumor is typically completed in childhood, survivors often suffer from long-term effects from treatment including visual impairment, facial deformities, and fear of recurrence or secondary cancer. However, little is known how these long-term effects affect their health-related quality of life (HRQOL). Purpose: To review the literature on HRQOL in retinoblastoma survivors. Method: We searched three electronic databases from January 2005 to December 2018 for original research articles reporting on HRQOL or individual domains such as function, cognition, and psychosocial outcomes in retinoblastoma survivors. Results: A total of 59 articles were reviewed and 15 were identified as eligible. Five of the studies reported worse HRQOL in retinoblastoma survivors than controls or general population norms. Parent-proxy ratings were worse than survivors' self-reports. Conclusion: Our findings confirm the need for further HRQOL research to assess the factors influencing long-term outcomes associated with treatment in adolescent and young adult retinoblastoma survivors. By identifying any potential deficits in specific domains of HRQOL, early interventions might be developed to improve HRQOL in retinoblastoma survivors. |
| Databáze: | OpenAIRE |
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